Keywords:
Autism Spectrum Disorder
Medical expertise
Social benefits
Public policies
Social inclusion.

  • Abstract

    Autism Spectrum Disorder (ASD) is a neurodevelopmental condition characterized by persistent deficits in communication, social interaction, and adaptive behaviors, with wide clinical heterogeneity. In the Brazilian context, the granting of social benefits to children diagnosed with ASD is a topic of increasing relevance, due to the complexity of the evaluation criteria and the need for equity in decisions. This study analyzed the perception of medical experts in the state of Pernambuco about the processes related to this granting, with special attention to diagnostic tools and evaluation methods. Thus, through a descriptive and cross-sectional research, a mixed approach was adopted, combining qualitative and quantitative data. The variables analyzed include socioeconomic and professional profile, as well as the level of technical knowledge and the use of standardized protocols. The results reveal significant challenges, such as subjectivity in opinions, lack of continuous training, and limited application of recognized diagnostic instruments, factors that result in inconsistencies and difficulties in ensuring social justice in the granting of benefits. The study concludes that the implementation of standardized guidelines, aligned with scientific advances on ASD, and the provision of ongoing technical training are fundamental strategies for strengthening expert assessments. These measures are essential to promote fairer, more equitable and well-founded assessments, contributing to the strengthening of public policies and respect for the rights of children with ASD and their families.

     

    Keywords: Autism Spectrum Disorder. Medical expertise. Social benefits. Public policies. Social inclusion.

  • References

    1. ADAMS, S.; LASALLE, J. M. Chapter 4.6 - MeCP2 and Autism Spectrum Disorders. The Neuroscience of Autism Spectrum Disorders, p. 421-436, 2013. Disponivel em: <https://doi.org/10.1016/B978-0-12-391924-3.00031-4>.
    2. ALMEIDA, M. L.; NEVES, A. S. A Popularização Diagnóstica do Autismo: uma Falsa Epidemia? Psicologia: Ciência e Profissão, Brasília, XXXX, 2020. 1-12.
    3. AMERICAN PSYCHIATRIC ASSOCIATION. Diagnostic and Statistical Manual of Mental Disorders, 5th Edition. Washington D.C.: American Psychiatric Publishing, 2013.
    4. BRENTANI, H. et al. Autism spectrum disorders: an overview on diagnosis and treatment. Revista Brasileira de Pediatria, v. 35, p. 62-72, 2013. Disponivel em: <https://doi.org/10.1590/1516-4446-2013-s104>.
    5. CHAMAK, B. Autism and social movements: French parents’ associations and international autistic individuals’ organisations. Wiley-Blackwell. Sociology of Health & Illness, v. 30 (01), p. 31, Janeiro 2008. Disponivel em: <https://onlinelibrary.wiley.com/doi/10.1111/j.1467-9566.2007.01053.x>.
    6. CHASTE, P.; LEBOYER, M. Autism risk factors: genes, environment, andgene-environment interactions. Dialogues in Clinical Neuroscience, v. 14(3), p. 281-292, Abril 2022. Disponivel em: <https://doi.org/10.31887/DCNS.2012.14.3/pchaste>.
    7. DICICCO-BLOOM, E. et al. The Developmental Neurobiology of Autism Spectrum Disorder. Journal of Neuroscience, v. 26 (26), p. 28, Junho 2006. Disponivel em: <https://www.jneurosci.org/content/26/26/6897>.
    8. DUDA, M.; WALL, D. P. Rising interdisciplinary collaborations refine our understanding of autisms and give hope to more personalized solutions. Persoanlized Medicine, 03 Agosto 2015. Disponivel em: <https://doi.org/10.2217/pme.15.8>.
    9. FAKHOURY, M. Imaging genetics in autism spectrum disorders: Linking genetics and brain imaging in the pursuit of the underlying neurobiological mechanisms. Progress in Neuro-Psychopharmacology and Biological Psychiatry, v. 80, p. 010-114, Janeiro 2018. Disponivel em: <https://doi.org/10.1016/j.pnpbp.2017.02.026>.
    10. FÁVERO, M. Â. B.; SANTOS, M. A. D. Autismo infantil e estresse familiar: uma revisão sistemática da literatura. Psicologia: Reflexão e Crítica, Brasília, v. XVIII, n. 3, Dezembro 2005. Disponivel em: <https://doi.org/10.1590/S0102-79722005000300010>.
    11. FILHO, D. L. N.; PIZO, G. A. I. Métodos de Diagnóstico do Transtorno do Espectro Autista (TEA), Uma Análise do Processo e a Correlação com a Engenharia. Revista Interdisciplinar de Pesquisa em Engenharia, v. 4(01), p. 15-31, Agosto 2018. Disponivel em: <https://doi.org/10.26512/ripe.v4i1.13446>.
    12. FREITAG, C. M. The genetics of autistic disorders and its clinical relevance: a review of the literature. Mol Psychiatry, n. 12, p. 2-22, 2006. Disponivel em: <https://doi.org/10.1038/sj.mp.4001896>.
    13. FRIGAUX, A.; ÉVRARD, R.; LIGHEZZOLO-ALNOT, J. L’ADI-R et l’ADOS face au diagnostic différentiel des troubles du spectre autistique: intérêts, limites et ouvertures. L'Encéphale, v. 45(05), p. 441-448, Novembro 2019. Disponivel em: <https://doi.org/10.1016/j.encep.2019.07.002>.
    14. GADIA, C. A.; TUCHMAN, R.; ROTTA, N. T. Autismo e doenças invasivas de desenvolvimento. Jornal de Pediatria, Rio de Janeiro, v. LXXX, n. 2, 2004.
    15. GIRIANELLI, V. R. et al. Diagnóstico precoce do autismo e outros transtornos do desenvolvimento, Brasil, 2013–2019. Revista de Saúde Pública, v. 57(01), p. 21-32, Março 2023. Disponivel em: <https://doi.org/10.11606/s1518-8787.2023057004710>.
    16. HILL, E.; FRITH, U. Understanding autism: insights from mind and brain. The Royal Society, Londres, p. 281-289, 08 Janeiro 2003.
    17. HYMAN, S. L.; LEVY, S. E.; MYERS, S. M. Identification, Evaluation, and Management of Children With Autism Spectrum Disorder. American Academy of Pediatrics, v. 145(01), 01 Janeiro 2020. Disponivel em: <https://doi.org/10.1542/peds.2019-3447>.
    18. JOHNSON, C. P.; MYERS, S. M. Identification and Evaluation of Children With Autism Spectrum Disorders. American Academy of Pediatrics, v. 120(05), p. 1183-1215, 01 Novembro 2007. Disponivel em: <https://doi.org/10.1542/peds.2007-2361>.
    19. KLIN, A. Autismo e síndrome de Asperger: uma visão geral. Brazilian Journal of Psychiatry, v. 28 (01), Maio 2006. Disponivel em: <https://doi.org/10.1590/S1516-44462006000500002>.
    20. LEEUW, A. D.; HAPPÉ, F.; HOEKSTRA, R. A. A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe. Autism research, v. 13(07), p. 1029-1050, 2020. Disponivel em: <https://doi.org/10.1002/aur.2276>.
    21. MAS, N. A. Transtorno do espectro autista-história da construção de um diagnóstico [Dissertação de Mestrado]. São Paulo: Univeridade de São Paulo, 2009.
    22. MESIBOV, G. B.; ADAMS, L. W.; SCHOPLER, E. Autism: A Brief History. Psychoanalytic Inquiry, v. 20 (5), p. 637-647, 01 Julho 2008. Disponivel em: <https://doi.org/10.1080/07351692009348913>.
    23. MILLES, J. H. Autism spectrum disorders—A genetics review. Genetics in Medicine, v. IV, n. 13, p. 278-294, Abril 2011. Disponivel em: <https://doi.org/10.1097/GIM.0b013e3181ff67ba>.
    24. MONTEIRO, P.; FENG, G. SHANK proteins: roles at the synapse and in autism spectrum disorder. Nature reviews, v. 18(03), p. 147-157, Fevereiro 2017. Disponivel em: <https://doi.org/10.1038/nrn.2016.183>.
    25. PERSICO, A. M.; NAPOLIONO, V. Autism genetics. Behavioural Brain Research, v. 251, p. 95-112, Agosto 2013. Disponivel em: <https://www.sciencedirect.com/science/article/abs/pii/S0166432813003562>.
    26. ROBINSON, E. B.; NEALE, B. M.; HYMAN, S. E. Genetic research in autism spectrum disorders. Curr Opin Pediatr, 27 Dezembro 2015. Disponivel em: <https://doi.org/10.1097%2FMOP.0000000000000278>.
    27. ROCHA, V. P. et al. Diagnóstico tardio de Transtorno do Espectro Autista e seus impactos sociais e clínicos. Brazilian Journal of Health Review, v. 6 (02), p. 6962-6970, 2023. Disponivel em: <https://ojs.brazilianjournals.com.br/ojs/index.php/BJHR/article/view/58677>.
    28. SOCIEDADE BRASILEIRA DE PEDIATRIA. Transtorno do Espectro do Autismo. nº 05. ed. [S.l.]: Sociedade Brasileira de Pediatria, 2019.
    29. UCHINO, S.; WAGA, C. SHANK3 as an autism spectrum disorder-associated gene. Brain & Development, v. 35 (02), p. 106-110, Fevereiro 2013. Disponivel em: <https://doi.org/10.1016/j.braindev.2012.05.013>.
    30. WING, L. The relationship between Asperger's syndrome and Kanners's autism. Autism and Asperger syndrome, 1991. 93-121. Disponivel em: <https://psycnet.apa.org/doi/10.1017/CBO9780511526770.003>.
    31. ZWAIGENBAUM, L. et al. Early Identification and Interventions for Autism Spectrum Disorder: Executive Summary. American Academy of Pediatrics, v. 136, p. 1-9, Outubro 2015. Disponivel em: <https://doi.org/10.1542/peds.2014-3667B>.
    32. ZWAIGENBAUM, L. et al. Early Screening of Autism Spectrum Disorder: Recommendations for Practice and Research. American Academy of Pediatrics, v. 136, p. 41-59, Outubro 2015. Disponivel em: <https://doi.org/10.1542/peds.2014-3667D>.
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How to cite

Silva, A. C. da, Campello, R. I. C., & Laureano Filho, J. R. (2025). ANALYSIS OF THE PERCEPTION OF EXPERTS FROM THE MEDICAL EXPERTISE SERVICE OF THE STATE OF PERNAMBUCO ON THE GRANTING OF BENEFITS TO CHILDREN WITH AUTISTIC SPECTRUM AND THEIR FAMILIES. Derecho Y Cambio Social, 21(78), e65. https://doi.org/10.54899/dcs.v21i78.65
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